Child health
Acorns Children's Hospice Trust
8a Wake Green Road, Moseley, Birmingham, B13 9EZ
Tel:0121 248 4850
Helpline: 0121 248 4850
Fax: 0121 248 4816
E-mail: johnoverton@acornscht.demon.co.uk
Web address: www.acorns.org.uk
Offers emotional and practical support, including home visiting, and respite and palliative care to life-limited children and their families.
Action for Sick Children
300 Kingston Road, London, SW20 8LX
Tel: 0208 5484848
Fax: 0208 5422424
E-mail: action_for_sick_children_edu@msn.com
Web address: www.actionforsickchildren.org.uk
Joins parents and professionals in promoting high-quality healthcare for children in hospital and at home. Local branches offer practical help and support to parents and professionals in their own hospitals.
Anna Freud Centre
21 Maresfield Gardens, London, NW3 5SD
Tel: 0207 7942313
Fax: 0207 7946506
Web address: www.annafreudcentre.org
Offers psychotherapeutic treatment to emotionally disturbed children and adolescents. Provides a family support service, clinical assessment and therapy services, an early prevention programme, run through the parent-infant psychotherapy service, toddler groups and a nursery.
Association for Brain-Damaged Children and Young Adults
Clifton House, 3 St Pauls Road, Foleshill, Coventry, CV6 5DE
Tel: 02476 665450
Fax: 02476 665450
Runs a short-stay respite home for children and a residential home for young adults with complex disabilities.
British Institute for Brain-Injured Children
Knowle Hall, Knowle, Bridgwater, Somerset, TA7 8PJ
Tel: 01278 684060
Fax: 01225 722509
E-mail: info@bibic.org.uk
Web address: www.bibic.org.uk/
Prescribes treatment programmes for brain-injured children, to be carried out at home by parents and volunteer helpers. Periods of in-patient specialised treatment or therapy are offered when appropriate.
Cancer and Leukaemia in Childhood
12-13 King Square, Bristol, BS2 8JH
Tel: 0117 9248844
Fax: 0117 9244505
E-mail: @clic-charity.demon.co.uk
Web address: www.clic.uk.com
Offers welfare grants and 'crisis break' accommodation to any sick child nationally. Develops regional networks of domiciliary care nurses and 'homes from home' (places for families to stay near their sick children in hospital).
Child Growth Foundation
2 Mayfield Avenue, London, W4 1PW
Tel: 0208 9947625
Fax: 0208 9959075
E-mail: cgflondon@aol.com
Supports individuals or institutions researching the causes of and cures for growth conditions. Maintains a network of families to offer support and advice for any family concerned or diagnosed with a growth problem.
Child Psychotherapy Trust
Star House, 104-108 Grafton Road, London, NW5 4BD
Tel: 0207 2841355
Fax: 0207 2842755
E-mail: cpt@globalnet.co.uk
Provides information on children's emotional development and behaviour problems to parents and primary health workers. Works with health and local authority purchasers and providers of mental health, paediatric and children's services to improve the scope and standard of services offered to children and families.
Children's Community Contact Centre (4 C's)
Adamsdown Community Centre, Metal Street, Cardiff, CF2 1JZ
Tel: 02920 451545
Fax: 02920 451545
E-mail: 4C's@contact-centre.freeserve.co.uk
The 4C's provides a neutral environment for children to meet with a parent and/or other family members following separation or divorce, to enable contact to be maintained. Operates in Cardiff and the surrounding areas within south east Wales.
Children's Head Injury Trust
C/o Neurosurgery, The Radcliffe Infirmary, Woodstock Road, Oxford, OX2 6HE
Tel: 01865 224786
Fax: 01865 224786
E-mail: execdir@chit.demon.co.uk
Web address: www.glaxocentre.merseyside.org/CHIT.html
Aims to relieve the disabilities of head-injured children. Sets up local family support groups and runs an advice line.
Children's Liver Disease Foundation
36 Great Charles Street, Birmingham, B3 3JY
Tel: 0121 2123839
Fax: 0121 2124300
E-mail: info@childliverdisease.org
Web address: www.childliverdisease.org
Provides advice and support for families.
Children's Trust
Tadworth Court, Tadworth, Surrey, KT20 5RU
Tel: 01737 357171
Fax: 01737 373848
E-mail: c-trust@netcomuk.co.uk
Web address: www.childrens-trust.org.uk
Provides specialist care, rehabilitation and education for children with profound disabilities. It offers short-term, transitional and palliative nursing, therapy, medical care, rehabilitation for children with acquired brain injury, rehabilitation for adolescents with challenging needs as a result of brain injury and children's outreach care delivered, at home, to support each individual child and their family.
Contact a Family
Victory House, 170 Tottenham Court Road, London, W1P 0HA
Tel: 0207 3833555
Fax: 0207 3830259
E-mail: info@cafamily.org.uk
Web address: www.cafamily.org.uk
Promotes mutual support between families caring for children with any type of disability or special need within the same neighbourhood. Maintains a network of over 800 local groups and contacts and a national network of over 300 groups and contacts specialising in specific conditions in children.
Cystic Fibrosis Research Trust
11 London Road, Bromley, Kent, BR1 1BY
Tel: 0208 4647211
Fax: 0208 3130472
Web address: www.cftrust.org.uk
Through its network of 300 branches and groups, helping and advising cystic fibrosis families with any problems arising in schooling, employment and housing, for example.
Dreams Come True Charity
York House, Knockhundred Row, Midhurst, West Sussex, GU29 9DQ
Tel: 01730 815000
Fax: 01730 813141
Their objective is to try and fulfil the dreams of young people aged 2-21 who are sick and, in some cases, terminally ill. This may be achieved through travel, visiting relatives, meeting a famous person or through the use of educational equipment or mobility aids.
Edward's Trust
Edward House, St Mary's Row, Off Whittle Street, Birmingham, B4 6NY
Tel: 0121 2375656
Fax: 0121 2375657
Promotes the relief of children and families who have suffered the death of a child, from conception onwards. Meets accommodation needs for families while their child is being treated in Birmingham. All services free to families who have a sick child or who have lost a child from whatever cause.
Enuresis Resource and Information Centre
34 Old School House, Britannia Road, Kingswood, Bristol, BS15 8DB
Tel: 0117 9603060
Helpline: 0117 9603060
Fax: 0117 9600401
E-mail: enuresis@compuserve.com
Web address: www.enuresis.org.uk
Maintains a database containing services available for enuretic children. Aims to improve awareness of bedwetting and day wetting.
Evelina Family Trust Ltd
Ronald McDonald House, 115-122 Snowsfields, London, SE1 3SS
Tel: 0207 9554780
Fax: 0207 3570193
E-mail: Cynthia@evelinafamilytrust.org
Web address: www.evelinafamilytrust.org
Provides a 'home from home' for the families of seriously ill children undergoing treatment at nearby Guy's Hospital.
HeartLine Association
Make-A-Wish House, Minster Court, Tuscam Way, Camberley, Surrey, GU15 3YY
Tel: 01276 675655
Fax: 01276 676979
E-mail: heartline@easynet.co.uk
Web address: www.heartline.org.uk
Provides information, contact and support for families who have children with congenital heart conditions.
Hyperactive Children's Support Group
71 Whyke Lane, Chichester, West Sussex, PO19 2LD
Tel: 01903 725182
Fax: 01903 734726
E-mail: hacsg@hyperactive.force9.net
Web address: http://homepages/force9.net/hyperactive/
Offers support and advice to parents and professionals with hyperactive/ADHD children, using dietary and nutritional therapies, as opposed to medication.
In Touch
10 Norman Road, Sale, Cheshire, M33 3DF
Tel: 0161 9052440
Fax: 0161 7185787
E-mail: jworth@globalnet.co.uk
Helps to provide informal contacts for parents of children with rare disorders, to enable them to offer and receive support and exchange information.
Justice for All Vaccine-Damaged Children UK
Erins Cottage, Fussells Buildings, Whiteway Road, St George, Bristol, BS5 7QY
Tel: 0117 9557818 (9am-4pm)
Offers an in-touch service to parents of children damaged by vaccination and puts them in contact with other parents in their locality.
Make A Wish Foundation UK
Make-A-Wish House, Minster Court, Tuscam Way, Camberley, Surrey, GU15 3YY
Tel: 01276 24127
Fax: 01276 683727
Aims to grant the favourite wishes of children suffering with life-threatening illnesses.
National Association for the Education of Sick Children
18 Victoria Park Square, London, E2 9PF
Tel: 0208 9808523
Helpline: 0208 9808523
Fax: 0208 9803477
E-mail: naesc@ednsick.demon.co.uk
Web address: www.sickchildren.org.uk
Acts as an advisory service for sick children and their parents. Develops specialist secondary-level teaching materials for children with particular diseases.
National Blind Children's Society
Nat West Bank Chambers, Victoria Street, Burnham-on-Sea, Somerset, TA8 1AN
Tel: 01278 793792
Helpline: 0800 2791555
Fax: 01278 792929
Offers help to blind and partially sighted children.
Organic Acidaemias UK
5 Saxon Road, Ashford, Middlesex, TW15 1QL
Tel: 01784 245989
Helpline: 01784 245989
A contact point for parents of children with organic acidaemias, and provides information on the disorders and the special diets required.
Perthes Association
15 Recreation Road, Guildford, Surrey, GU1 1HE
Tel: 01483 534431
Helpline: 01483 306637
Fax: 01483 503213
E-mail: perthes@cableol.co.uk
Web address: www.perthes.org.uk
Provides advice and comfort to parents of children suffering from Perthes disease and other forms of osteochondritis, and helps them cope with the practical and financial problems this causes. Maintains a stock of major buggies, wheelchairs and hand-propelled tricycles for free loan to members.
Rainbow Centre for Children with Cancer and Life-Threatening Illnesses
27 Lilymead Ave, Bristol, BS4 2BY
Tel: 0117 9853343
Fax: 0117 9853353
Supports children with cancer and other life-threatening illnesses and their families, using counselling and complementary therapies. Provides bereavement counselling for children.
Rainbow Trust Children's Charity
Claire House, Bridge Street, Leatherhead, Surrey, KT22 8BZ
Tel: 01372 363438
Fax: 01372 363101
E-mail: enquiries@rainbowtrust.org.uk
Web address: www.rainbowtrust.org.uk
Provides social, emotional and practical support to children, and the families of children, with a life-threatening or life-limiting illnesses, primarily in their own homes, enabling children who are terminally ill to die at home.
Research Trust for Metabolic Diseases in Children
The Quadrangle, Crewe Hall, Weston Road, Crewe, CW1 6UR
Tel: 01270 250221
Helpline: 01270 250221
Fax: 01270 250244
Web address: www.rtmdc.org.uk
Runs a helpline and counselling service for affected families.
Sick Children's Trust
1a Doughty Street, London, WC1N 2PH
Tel: 0207 4043329
Fax: 0207 8313182
During a child's hospital treatment, they strive to keep families together by providing them with accommodation, in the belief that this promotes the child's recovery.
Support Organisation for Trisomy 13/18 and Related Disorders
Tudor Lodge, Redwood, Ross-on-Wye, Herefordshire, HR9 5UD
Tel: 0121 3513122 (helpline also)
Gives support, assistance and information to families when a pre-natal diagnosis of Trisomy 13/18 or related disorder is made, to families with newly diagnosed babies and to families caring for surviving children.
Williams Syndrome Foundation Ltd
161 High Street, Tonbridge, Kent, TN9 1BX
Tel: 01732 365152 (helpline as well)
Fax: 01732 360178
E-mail: john.nelson@wsfoundation.btinternet.com
Web address: www.williams(highton)syndrome.org.uk
Arranges meetings for parents, children, doctors and other interested parties. Gives information and advice to parents and puts them in touch through the parents association.
Write Away
1 Thorpe Close, London, W10 5XL
Tel: 0208 9644225
Fax: 0208 9643532
E-mail: penfriends@writeaway.demon.co.uk
Provides a penfriend club for children and adults with disabilities and special needs. Children's (aged 8-18) and adult's (aged 18+) clubs.
Young Minds (Children's mental health charity)
102-108 Clerkenwell Road, London, EC1M 5SA
Tel: 0207 3368445
Fax: 0207 3368446
E-mail: young.minds@ukonline.co.uk
Web address: www.youngminds.org.uk/
Runs an information service for parents and carers who are worried about the mental health or emotional well being of a child or young person. Provides details of local and national advice and helping services.